Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,110 Location: London
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Hi everyone, well, been on these for more than a week, no improvement. To be honest, I am in more pain now than before. I also have the rash I had last summer on my left leg, and signs of the same on right one now cast is off. Still have to use crutches for two more weeks, probably just as well, as I went out with my daughter yesterday with little Amelie and felt absolutely exhausted, and my hips and knees joined my feet causing more pain. I know I havent done much, but I still feel worse!! I also stopped the steroids two weeks ago, and when I did this last summer is when the rash came up,, which he put down to the sulfa at the time. I am worried that it will get worse, he always asks me if it has returned, and so far it hadnt. Do I need to let them know? The nurses never get back to me, its just a voice mail, and it says they will call back, but never seem to. So, I am fully back working with the babies now, so need to keep going. I know lots of the problems could be related to fibro and osteo, but then the steroids don't help these, so why do I feel much better when I am on them if he feels the mtx and hydroxy are controlling my disease? Feeling really down at the moment too, my elder daughter Leanne is moving out in June to live with her boyfriend, and my younger one Georgia will be off to uni in September. I am happy for them of course, but sad for me, sorry, that's me being selfish! Trying not to think about it for now. Thanks for letting me have a moan! much love x BARBARA
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